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On July 15, 2016, a appointment was held in the city of São Paulo with the Wolfram Syndrome patient, Rafaela Ungaretti, accompanied by her parents, along with patient Natã do Vale and his family. The families from Porto Alegre and Curitiba set the appointment for the same date in São Paulo in order to meet each other.

After the consultation, the patient Natã began the medical treatment to slow the evolution of the optic nerve atrophy, a treatment that Rafaela has been under for four years with the American neuro-ophthalmologist, Alfredo Sadun, MD (Doctor Carlos Chicani’s colleague).