Wolfram Inside Wolfram Inside Wolfram Inside Wolfram Inside
  • My Story
  • Living with Wolfram
    • My History with Diabetes
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    • My History with Vision Loss
    • Visit to St. Louis
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News

  • dia mundial doença rara

    (Português do Brasil) Dia Mundial das Doenças Raras

    24 de February de 2018

    Sorry, this entry is only available in Português do Brasil.

  • I’m already registered, and you?

    21 de February de 2018

    Be My Eyes is a free mobile app designided to bring sight to the blind and visually impaired. With the press of a button, the app stabilizes a live video…

  • WolframInside participate to the fundraiser of The Snow Foundation in USA

    16 de October de 2017

    Last September 30th Rafaela Ungaretti was invite by The Snow Foundation to participate to the fundraiser at The Four Seasons Hotel located in St. Louis, USA. On behalf WolframInside, during…

  • WolframInside – Interviewing Leo

    28 de September de 2017

    On the new video we will meet Léo, he is 29 years old, lives in Guarulhos-SP and has Wolfram. We already talked about him on the site.  Léo is the first interviewee…

  • (Português do Brasil) Subcomissão Especial sobre Doenças Raras

    5 de September de 2017

    Sorry, this entry is only available in Português do Brasil.

  • Traveling with Wolfram – Mexico

    27 de August de 2017

    New video on my youtube channel “Wolfram Inside”. In this series “Traveling with Wolfram”, I show what it’s like to get out of my routine and know a new place…

  • Where to find us” and follow us

    22 de June de 2017

  • A way of hope

    14 de June de 2017

    I am a Wolfram syndrome patient and that is why I need to be very careful with my health and doing medical appoitments is very important to me. Thanks to…

  • Wolfram Inside and its meaning

    3 de May de 2017

    The choice of the name and the logo of the Wolfram Inside left me afraid since the beggining of the first project’s feature. But I was very lucky to have…

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logo wolfram inside

SITE MAP

  • My Story
  • What is Wolfram?
  • Snow Foundation
  • Contact

LIVING WITH WOLFRAM

  • (Português do Brasil) Dia Mundial das Doenças Raras
  • I’m already registered, and you?
  • Doug Lynch
  • WolframInside participate to the fundraiser of The Snow Foundation in USA
  • WolframInside – Interviewing Leo

Who we are

This site is not just my voice; it is also the voice of a rare disease. We work each day, together with the help of doctors and researchers, to aware people and to get closer to the cure or to a new treatment for the manifestations associated with Wolfram Syndrome.

Language:

  • Português do Brasil
  • English

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