Português do Brasil-
The Snow Foundation has joined forces with Belgium and France
The Snow Foundation has joined forces with Belgium and France to find the cure for Wolfram Syndrome. This is an exciting news in the world of WS. Help us to…
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Natã, another Wolfram Syndrome patient
It was about a year ago that I first met another Wolfram Syndrome patient, just like me. It was at a doctor’s appointment in São Paulo where I met Natã…
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Release WolframInside – Share this idea
As well as Rafaela, other people live with Wolfram. Some are diagnosed too late due to lack of information, lack of knowledge and that is why the WolframInside was created. A website…
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Visit to the Washington University Research Center in St. Louis (USA)
On May 8, 2016, the patient Rafaela, accompanied by her parents, had a medical consultation with the researcher of “Washington University”, Doctor Fumihiko Urano. At the consultation, they talked about…
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Appointment with neuro-ophthalmologist Carlos Felipe Chicani, MD
On July 15, 2016, a appointment was held in the city of São Paulo with the Wolfram Syndrome patient, Rafaela Ungaretti, accompanied by her parents, along with patient Natã do Vale…
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Lectures at Universidade Positivo from Curitiba-PR and Pontifícia Universidade Católica do Paraná
Invited by the geneticist Salmo Raskin MD, Rafaela do Vale (sister of the Wolfram Syndrome patient Natã do Vale) and the patient Rafaela Ungaretti held two lectures addressing the subject…
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