Wolfram Inside Wolfram Inside Wolfram Inside Wolfram Inside
  • My Story
  • Living with Wolfram
    • My History with Diabetes
    • My History with Hearing Loss
    • My History with Vision Loss
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Living with Wolfram

  • About Depression

    20 de May de 2017

    Psychiatric symptoms are very common in Wolfram syndrome patients. Researches on WS report that, many times, suicide attempts happen impulsively, in a moment of feeling extremely unhappiness. Changes in character,…

  • My History with Diabetes

    29 de March de 2017

    There I was, a small 4-year-old child, lying in a hospital bed. Lost, afraid, anguished, and without understanding what was happening to me and around me, I just sought to…

  • My History with Hearing Loss

    28 de March de 2017

    What takes a 13-year-old to accept and believe that she has a hearing loss? At first I thought I had deficit of attention and that when someone talked to me…

  • My History with Vision Loss

    28 de March de 2017

    I remember when the teacher put me in the back row of the classroom because of the seating chart which dictated where each student would sit in class. It was…

  • Visit to St. Louis

    28 de March de 2017

    Certainly, St. Louis has become an extremely important city in my life because it is where I met people who welcomed me with love and open arms. These people struggle…

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  • My Story
  • What is Wolfram?
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LIVING WITH WOLFRAM

  • (Português do Brasil) Dia Mundial das Doenças Raras
  • I’m already registered, and you?
  • Doug Lynch
  • WolframInside participate to the fundraiser of The Snow Foundation in USA
  • WolframInside – Interviewing Leo

Who we are

This site is not just my voice; it is also the voice of a rare disease. We work each day, together with the help of doctors and researchers, to aware people and to get closer to the cure or to a new treatment for the manifestations associated with Wolfram Syndrome.

Language:

  • Português do Brasil
  • English

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